🧮 To be written by the founding 100

Financial planning

Nobody hands you this map at diagnosis. The framework below is ready — the answers will come from founding parents who've sat with the lawyers, fought the insurers and done the sums, country by country.

The seven questions every family eventually faces

  1. What happens when my child turns 18?
  2. What if my child never lives independently?
  3. How do I plan financially for that?
  4. What legal structures should I understand? (trusts, guardianship, powers of attorney)
  5. What happens after I die?
  6. How does this differ by country?
  7. What should I ask a financial planner, specifically?

Plus the honest eighth: the invisible day-to-day costs that compound across decades.

Nothing on this page will ever be financial or legal advice — it will be parents telling other parents what they asked, what they set up, and what they wish they'd known, so you walk into professional meetings prepared.
Founders who've done any of this — set up a trust, won an insurance appeal, planned the will — the money group is where your hard-won knowledge saves the next family a year. Not a member yet? Claim a founding place →